I was promised that all I needed was surgery. And yes that was all I needed to get rid of the present cancer. God kept his promise to me. He also told it it wasn't going to be easy. I had questioned that because I actually having a easy time healing with no problems or complications. I thought I had this cancer thing in the bag, thrown out, gone, CANCER FREE. Well God did keep his promise, all I needed was surgery to rid my body of this cancer. Then I find out that there was more cancer in my breast then what was first found and my test score came back higher then I had expected. So I asked God "What is up with this? You promised all I needed was surgery." Now the fight is to keep it from coming back. This is so much harder than I ever expected. Some people reactions are really throwing for a loop. I am so scared...so so scared. I don't want to go thru this again. Nothing is guaranteed. God did tell me I wouldn't die from this. Did he mean breast cancer or cancer in general? I'm praying for help in this decision. I'm being told to wait. I guess the answer will be clear when the time is right. My surgeon said that the oncology team highly recommend chemo because of my young age and that multiple tumors were found. I believe that if i didn't have the surgery when I did, it would have spread to my lymph nodes then there wouldn't be any questions. But God had my Dr. move quickly cause he was concerned about my lymph nodes. Sometimes I wonder if I should have had my other breast removed but I don't think that would have helped much since the cancer can show up else where in my body ie: bones,liver.
What to do...what to do..All God is telling me right now is wait. That is what I have been doing but the wait is not easy. God has been honest with me and no matter what others may think He is what have been guiding me. He has not steered me wrong yet on this journey. I'm holding on to my faith with all my might. I was told this will be tough... I guess this is the rough, rocky road I'm about to travel. All I can do is strap on my seat belt and had God the keys.
I have been instructed by God to share my journey to become a breast cancer and a meningioma (brain tumor) survivor!!!!
Wednesday, March 14, 2012
Tuesday, March 13, 2012
The Oncotype test results (chemo or no chemo)
I went to
see my surgeon yesterday to get the results of my Oncotype DX test.(to
see if I need chemo) plus get a better understanding of my pathology
report. Well the pathology report was good. my margins were clear and
nodes negative. I originally had 2 tumors they found a 3rd. and the
Dcis was 4.1 cm and no metastases, so the mastectomy was the best thing for me. so I had
Stage 1A cancer. He said this was the best type to have. Now normally that would be treated with just tamoxifen
for 5 years BUT..... My Oncotype DX test was a 23 which put me in the
middle of the middle of the chart for benefiting from chemo. The test
tells me I have a 15% chance of the cancer coming back in 10 years or
85% of it never coming back. My surgeon is consulting with a team of 3
Oncologist today and will tell me what
was said later this evening and then I will consult with them. This
really suck because it falls in my hands on what to do. I didn't know
where else to turn. Of course my husband doesn't want me to go thru
chemo neither do I but it's one thing to not want it but need it (like
the surgery)and another to not want it and maybe you will or maybe you
wont benefit from it. How do you make such a decision for your life.
This is so unfair Cancer sucks. I'm not looking for someone to make
this decision for me.
God told me this morning that my fight is just beginning. I know that I have way too much to live for. I feel like I should flip a coin because this whole this is really up to chance. God tells me things change. It has just really hit me that this is a fight I will be fighting for the rest of my life. My husband and children need me. My daughter and I are planning a trip to Paris next year to celebrate me beating this mess. I'm Mad now. I know some women are having a harder time then I am and I know my cancer is easier to deal with but this whole cancer this is just wrong. I still don't know what me decision will be i still need to meet with the Oncologist after my surgeon does. I'm praying God will have an answer for me by then. I guess I'm still waiting( the patience test..lol)
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Monday, March 12, 2012
Feeling some kind of way
I'm feeling some kind of way today. Today is the day I get the results of the OncotypeDX Test (tells me the chances of the cancer coming back). I find out if I need chemo or not. I know God told me "just surgery" He also told me I will be ok. Me and my family have been given so many blessings sine we found out about the cancer. God has told me this road will be tough and hard but it will be worth it in the end. I was also told that there are more blessings to come.
While looking over the paperwork and my pathology report I notice that my cancer had changed. When it was first found they were a stage 0 and stage 1. By the time of surgery they were a stage 1 and stage 2. The tumors had grown larger. So I know several of my other numbers that they use as markers must have increased. That is why I am concerned. I wonder if the original treatment plan has changed. God has me on this road where I don't know where I going and all I know is I will be ok at the end. This is not easy to surrender all to God (especially when I like to control everything...lol) I know this is a test of my faith and each time I hold on He blesses me for my obedience. I'm not sure if being scared is what I'm feeling or worry.. I don't know what it is I just feel some kind of way.
I still don't like taking a shower. I haven't gotten use to my new body. The good thing is that when I went to church this past Sunday, you couldn't tell anything was gone cause I have so much padding compressing me I look almost even.lol I know I will have new boobs by summer..... There goes that test of patience again I guess..lol.. This blog has been great therapy. I have been reading other survivors stories too. They seem to help a lot. So tonight I find out how I will be spending my spring and summer. All I keep hearing is God saying" I got you"
While looking over the paperwork and my pathology report I notice that my cancer had changed. When it was first found they were a stage 0 and stage 1. By the time of surgery they were a stage 1 and stage 2. The tumors had grown larger. So I know several of my other numbers that they use as markers must have increased. That is why I am concerned. I wonder if the original treatment plan has changed. God has me on this road where I don't know where I going and all I know is I will be ok at the end. This is not easy to surrender all to God (especially when I like to control everything...lol) I know this is a test of my faith and each time I hold on He blesses me for my obedience. I'm not sure if being scared is what I'm feeling or worry.. I don't know what it is I just feel some kind of way.
I still don't like taking a shower. I haven't gotten use to my new body. The good thing is that when I went to church this past Sunday, you couldn't tell anything was gone cause I have so much padding compressing me I look almost even.lol I know I will have new boobs by summer..... There goes that test of patience again I guess..lol.. This blog has been great therapy. I have been reading other survivors stories too. They seem to help a lot. So tonight I find out how I will be spending my spring and summer. All I keep hearing is God saying" I got you"
Wednesday, March 7, 2012
My 1st Shower
I took my first shower today...... It was a very surreal moment. Bandages gone, drain tube gone, breast gone. All I could do is look at myself in the mirror. The last shower I took was the morning of my surgery. I had to wash with that special stuff the Dr. gave me so it would reduce infection. I had smelled like medicine ..lol Today I was able to wash with my own shower gel. As I stepped into the shower I was kinda scared to get the right side wet. I am still numb in that area and under my arm. I was happy with my body. I was very proud of the body I had at the age of 41, especially my breast.. I really really liked them. Now I have to get use to this new body. I know I will have a new breast soon but its not the same. The shower felt good. I didn't do much with the "right"side because it is still healing so I just washed around it. I'm praying my test comes back that I don't need chemo or radiation. This going too take some time getting use to.
3 weeks today
It has been 3 weeks since my surgery. Things have been very interesting the past couple of days. I went to church Sunday. I had quite a bit of anxiety about going. Me being loopsided started to get to me for the first time. And with me being the "First Lady" I knew people would be looking at me. The only person who saw my tears was my husband. He did his best to talk me down and convinced me not to wear this huge sweater I wanted to wear(I probably would have lost 10lb in sweat if I wore it lol). When we got to the church I went straight to my office. I had to sit in there a bit before joining everyone else for service. Everybody was so nice and loving. They did everything they could to make sure I was comfortable as possible. I'm glad I went. I love Faith Church Baltimore. I did discover that you use some of your chest muscles when you clap.. so clapping during praise and worship was a little tough. After service, my hubby fed me some fried fish (another one of my cravings) and I slept the rest of the day.
I guess this is where the fibromyalgia really kicks in. I slept most of Monday. Good news is I was able to get my drainage tube removed on Tuesday. The Dr. said I am healing well and they will start filling my expander in 2 weeks. I had another anxiety moment right before my appointment. I just started getting frustrated with not being able to be independent like I was before cancer. I know in time I will be, it still gets to me. I finally got use to dealing with the fibromyalgia and now cancer. I still don't know what my treatment will be for sure. I guess God is having me repeat the lesson on patience. Waiting for my body to heal, waiting for the test results, waiting for my new breast.... yeah. I'm repeating this lesson. So now I'm sore from where the tube was removed and I have to have my right "breast" compressed at all times so fluid doesn't build up before they start to fill the expander(this is uncomfortable). I still have to take it easy. Honestly... I'm tired of taking it easy...lol I have been resting and sleeping for 3 weeks now. Guess I have to be patient.
I guess this is where the fibromyalgia really kicks in. I slept most of Monday. Good news is I was able to get my drainage tube removed on Tuesday. The Dr. said I am healing well and they will start filling my expander in 2 weeks. I had another anxiety moment right before my appointment. I just started getting frustrated with not being able to be independent like I was before cancer. I know in time I will be, it still gets to me. I finally got use to dealing with the fibromyalgia and now cancer. I still don't know what my treatment will be for sure. I guess God is having me repeat the lesson on patience. Waiting for my body to heal, waiting for the test results, waiting for my new breast.... yeah. I'm repeating this lesson. So now I'm sore from where the tube was removed and I have to have my right "breast" compressed at all times so fluid doesn't build up before they start to fill the expander(this is uncomfortable). I still have to take it easy. Honestly... I'm tired of taking it easy...lol I have been resting and sleeping for 3 weeks now. Guess I have to be patient.
Friday, March 2, 2012
3/2/2012
Today I am feel good. I washed my hair by myself. I had to do it in the kitchen sink because of the drain tube still in me but It is done and I feel so much better. I would love to flat iron it but I know that will have to wait so it's just wrapped up. I was able to put a shirt over my head yesterday. It was a big tshirt so I didn't have to raise my arm much. I'm gonna start working on getting my stamina up. This being tired all the time is for the birds. As soon as I can I'm going to take up yoga... I know it will be a few weeks before I can Zumba. I know I have to take better care of myself to help keep the cancer from coming back.
We did get good news last night. My hubby found a house for us. He want me to go see it before he sign anything, so tomorrow will be the first time out the house and not seeing a Dr. I am a little nervous cause of how I look. If I wear a big shirt you won't see the difference. as soon as I get the ok from my plastic surgeon, the American Cancer Society will help me even things out...lol So with all that said, I will probably be moving at the end of March.
Thanks to Facebook I have been able to still chat with my daughter while she is in Italy. It's funny she had been over there for only 2 days and she already have over 200 pic posted on her page. I love it because I feel like I am visiting Italy without leaving my living room. I can't wait to go visit someday. I'm looking forward to my life being normal again. Well as close to normal as my life can be...lol. I'm looking at life a little different and the people in it...but that's another whole blog entry. I feel a change coming.......
We did get good news last night. My hubby found a house for us. He want me to go see it before he sign anything, so tomorrow will be the first time out the house and not seeing a Dr. I am a little nervous cause of how I look. If I wear a big shirt you won't see the difference. as soon as I get the ok from my plastic surgeon, the American Cancer Society will help me even things out...lol So with all that said, I will probably be moving at the end of March.
Thanks to Facebook I have been able to still chat with my daughter while she is in Italy. It's funny she had been over there for only 2 days and she already have over 200 pic posted on her page. I love it because I feel like I am visiting Italy without leaving my living room. I can't wait to go visit someday. I'm looking forward to my life being normal again. Well as close to normal as my life can be...lol. I'm looking at life a little different and the people in it...but that's another whole blog entry. I feel a change coming.......
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