Well I met with my oncologist yesterday. She explained my pathology report in more detail to me. She also answered all my questions. I left that appointment feeling very informed and a little more equipped. I found out that I had 4 lymph nodes removed instead of 1. And I had what she considers"good cancer" and my oncotype score was not bad. she gave me the impression that she isn't completely sold on me benefiting from chemo. Since I am only 5 weeks out from surgery, we still have time to decide on treatment.
I know all the pros and cons now. pros for taking the chemo:
1. Reduces the chances of the cancer coming back in 10 years from 15% to 12%
2. I will loose the hair on my legs = no shaving this summer..lol
3. I will only need 4 rounds chemo
4. I will save money on hair care products.
Ok the cons of chemo
1. I finally let my hair grow...bye bye ( this is not fair, can't I just loose my leg hair)
2. my reconstruction will have to be postponed until 6 weeks after chemo (I really don't like this one) Instead of having it done in May or June.
3. good chance it will make me infertile
4. wearing a wig in the summer is HOT
5. no amusement parks for me this summer
6. toxic meds will be going thru my body
7. it's not 100% that the cancer won't come back some place else on my body
8. I will loose my eyebrows and eye lashes ( OH **** NOO) I don't want to be drawing on my face to look normal, it will be bad enough that I have 1 fake boob. the hair everywhere else can go. Leave the hair on my head..lol
9. Other chemo side effects.....yuck
10. fibromyalgia and chemo does not sound like a good combo.
That's all I can think of now. If I look at it from the positive side. without it I have a 85% chance of it not coming back some place else. 85% is not bad. Plus with a healthy diet and lifestyle I should be good to go. I have put this in God's hands. He did tell me to wait to make a decision. So I am waiting right now. I have time. So chemo or no chemo.... I don't know yet.
I have been instructed by God to share my journey to become a breast cancer and a meningioma (brain tumor) survivor!!!!
Showing posts with label OncotypeDX. Show all posts
Showing posts with label OncotypeDX. Show all posts
Tuesday, March 27, 2012
Wednesday, March 14, 2012
Promises were kept.
I was promised that all I needed was surgery. And yes that was all I needed to get rid of the present cancer. God kept his promise to me. He also told it it wasn't going to be easy. I had questioned that because I actually having a easy time healing with no problems or complications. I thought I had this cancer thing in the bag, thrown out, gone, CANCER FREE. Well God did keep his promise, all I needed was surgery to rid my body of this cancer. Then I find out that there was more cancer in my breast then what was first found and my test score came back higher then I had expected. So I asked God "What is up with this? You promised all I needed was surgery." Now the fight is to keep it from coming back. This is so much harder than I ever expected. Some people reactions are really throwing for a loop. I am so scared...so so scared. I don't want to go thru this again. Nothing is guaranteed. God did tell me I wouldn't die from this. Did he mean breast cancer or cancer in general? I'm praying for help in this decision. I'm being told to wait. I guess the answer will be clear when the time is right. My surgeon said that the oncology team highly recommend chemo because of my young age and that multiple tumors were found. I believe that if i didn't have the surgery when I did, it would have spread to my lymph nodes then there wouldn't be any questions. But God had my Dr. move quickly cause he was concerned about my lymph nodes. Sometimes I wonder if I should have had my other breast removed but I don't think that would have helped much since the cancer can show up else where in my body ie: bones,liver.
What to do...what to do..All God is telling me right now is wait. That is what I have been doing but the wait is not easy. God has been honest with me and no matter what others may think He is what have been guiding me. He has not steered me wrong yet on this journey. I'm holding on to my faith with all my might. I was told this will be tough... I guess this is the rough, rocky road I'm about to travel. All I can do is strap on my seat belt and had God the keys.
What to do...what to do..All God is telling me right now is wait. That is what I have been doing but the wait is not easy. God has been honest with me and no matter what others may think He is what have been guiding me. He has not steered me wrong yet on this journey. I'm holding on to my faith with all my might. I was told this will be tough... I guess this is the rough, rocky road I'm about to travel. All I can do is strap on my seat belt and had God the keys.
Tuesday, March 13, 2012
The Oncotype test results (chemo or no chemo)
I went to
see my surgeon yesterday to get the results of my Oncotype DX test.(to
see if I need chemo) plus get a better understanding of my pathology
report. Well the pathology report was good. my margins were clear and
nodes negative. I originally had 2 tumors they found a 3rd. and the
Dcis was 4.1 cm and no metastases, so the mastectomy was the best thing for me. so I had
Stage 1A cancer. He said this was the best type to have. Now normally that would be treated with just tamoxifen
for 5 years BUT..... My Oncotype DX test was a 23 which put me in the
middle of the middle of the chart for benefiting from chemo. The test
tells me I have a 15% chance of the cancer coming back in 10 years or
85% of it never coming back. My surgeon is consulting with a team of 3
Oncologist today and will tell me what
was said later this evening and then I will consult with them. This
really suck because it falls in my hands on what to do. I didn't know
where else to turn. Of course my husband doesn't want me to go thru
chemo neither do I but it's one thing to not want it but need it (like
the surgery)and another to not want it and maybe you will or maybe you
wont benefit from it. How do you make such a decision for your life.
This is so unfair Cancer sucks. I'm not looking for someone to make
this decision for me.
God told me this morning that my fight is just beginning. I know that I have way too much to live for. I feel like I should flip a coin because this whole this is really up to chance. God tells me things change. It has just really hit me that this is a fight I will be fighting for the rest of my life. My husband and children need me. My daughter and I are planning a trip to Paris next year to celebrate me beating this mess. I'm Mad now. I know some women are having a harder time then I am and I know my cancer is easier to deal with but this whole cancer this is just wrong. I still don't know what me decision will be i still need to meet with the Oncologist after my surgeon does. I'm praying God will have an answer for me by then. I guess I'm still waiting( the patience test..lol)
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Monday, March 12, 2012
Feeling some kind of way
I'm feeling some kind of way today. Today is the day I get the results of the OncotypeDX Test (tells me the chances of the cancer coming back). I find out if I need chemo or not. I know God told me "just surgery" He also told me I will be ok. Me and my family have been given so many blessings sine we found out about the cancer. God has told me this road will be tough and hard but it will be worth it in the end. I was also told that there are more blessings to come.
While looking over the paperwork and my pathology report I notice that my cancer had changed. When it was first found they were a stage 0 and stage 1. By the time of surgery they were a stage 1 and stage 2. The tumors had grown larger. So I know several of my other numbers that they use as markers must have increased. That is why I am concerned. I wonder if the original treatment plan has changed. God has me on this road where I don't know where I going and all I know is I will be ok at the end. This is not easy to surrender all to God (especially when I like to control everything...lol) I know this is a test of my faith and each time I hold on He blesses me for my obedience. I'm not sure if being scared is what I'm feeling or worry.. I don't know what it is I just feel some kind of way.
I still don't like taking a shower. I haven't gotten use to my new body. The good thing is that when I went to church this past Sunday, you couldn't tell anything was gone cause I have so much padding compressing me I look almost even.lol I know I will have new boobs by summer..... There goes that test of patience again I guess..lol.. This blog has been great therapy. I have been reading other survivors stories too. They seem to help a lot. So tonight I find out how I will be spending my spring and summer. All I keep hearing is God saying" I got you"
While looking over the paperwork and my pathology report I notice that my cancer had changed. When it was first found they were a stage 0 and stage 1. By the time of surgery they were a stage 1 and stage 2. The tumors had grown larger. So I know several of my other numbers that they use as markers must have increased. That is why I am concerned. I wonder if the original treatment plan has changed. God has me on this road where I don't know where I going and all I know is I will be ok at the end. This is not easy to surrender all to God (especially when I like to control everything...lol) I know this is a test of my faith and each time I hold on He blesses me for my obedience. I'm not sure if being scared is what I'm feeling or worry.. I don't know what it is I just feel some kind of way.
I still don't like taking a shower. I haven't gotten use to my new body. The good thing is that when I went to church this past Sunday, you couldn't tell anything was gone cause I have so much padding compressing me I look almost even.lol I know I will have new boobs by summer..... There goes that test of patience again I guess..lol.. This blog has been great therapy. I have been reading other survivors stories too. They seem to help a lot. So tonight I find out how I will be spending my spring and summer. All I keep hearing is God saying" I got you"
Tuesday, February 28, 2012
PATHOLOGY REPORT
The Dr. called me last night with the pathology report. I had 2 tumors, the 1st was a stage 0 DCIS tumor. Pretty much meaning it was 1cm or smaller in found in my milk ducts. The 2nd was a stage 1(the mammogram found this one) invasive tumor, this one was a little over 2cm in size. Both are fed by estrogen. So with all that said there is another test I have to have done. Its called OncotypeDX. Because my cancer was found so early and it did not spread to lymph nodes and its estrogen fed, I qualify for the test. This test determines the probability of the cancer coming back.. There is a score from 0 to 100 the lower the score, the less chance of recurrence. A score of 0 to 8 no need for chem. 9 -30 need to consider possibility of needing chemo, 31 and above I really need to consider chemo. So I have to wait another 2 weeks for those results. God is truly teaching me patience...lol So I won't know how I am going to be treated for another 2 weeks. I guess that's good with everything not hitting me all at once. I just kinda feel its just dragging out longer. Oh well like I have said before this is God's plan and I can't rush Him, so I will just sit back and enjoy the ride because God is in control and He keeps telling me "I GOT YOU"
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