Saturday, October 4, 2014
Meningioma Support For Us
Mind Over Meningioma
Wednesday, October 1, 2014
The Breast Cancer Club is one I didn't want to join but proud I am a survivor, so I can help others. So I am here for anybody who needs to talk and just want an ear to listen and someone who understands all the crazy feelings you are having. Or if you just need some info. Did you know 1 in 8 women are diagnosed with breast cancer? Crazy isn't it! I didn't have breast cancer in my family. I am the first. So don't think it won't happen to you.
Bittersweet it is.
Wednesday, July 23, 2014
So this morning during my quiet time I decided not to ask God for anything today. I just sat saying THANK YOU. Over and over just thanking Him. Then I heard it loud and clear "LET THEM WATCH" Now I know this word isn't just for me. Someone reading this gets it and understands. At first I was like "What do you mean?" Then I remember what He did during my brain surgery. I had to start crying tears of joy. I know I will be ok no matter what is coming my way. God has always taken care of me. Always had me come out better than I was when I went in. So if you don't believe......just WATCH
Sunday, July 20, 2014
Oh Guess who is a little lighter??? YES ME ME!!!. At my last DR. appt I was 202lbs now I am 195lbs. Only in a couple of weeks with me only walking some.. I can't wait to see my oncologist in Nov. Well I got to get the family ready for church. Everybody have a very Blessed Sunday!
Thursday, July 10, 2014
God has been so so so good to me. He promised me that cancer wasn't going to kill me and He would handle the brain tumor and now He has controlled my fibromyalgia. I trusted God and asked for help when I needed and put it in God's hands when it was too much for me to handle. I give Him ALL the glory. He knows how skeptical I am. He had 2 people come to me at 2 totally different places to tell me about THRIVE. Because I heard about it but didn't believe and just thought it was something like Herbalife which I tried and it didn't do much for my health or pocket. But with someone telling me about it at church(he is also a good friend of my husband) and a total stranger at a yardsale in the same weekend I had to give it a try. God knows me ..lol He knows I'm hard-headed and need convincing. So when my husband tried his sample and I saw how great he felt and when he didn't need his antacids before bed like many many nights before and didn't have the desire to snack (this man was the snack monster...lol) I knew I wanted to try.
2 weeks later all I can do is cry tears of joy. I haven't felt this good since my early 20's. I use to wonder if I would ever feel normal. Now I am. I go to my Oncologist next week for bloodwork because they thought the cancer was trying to come back because certain levels were elevated, the PET scan didn't find anything so i go for bloodwork again. I can't wait for her to see me and see how well I'm doing. I believe my levels were elevated because of the pain meds I was taking back then. Since I don't take them I know my levels will be back to normal.
Now don't get me wrong.. I do eat healthier and I exercise (some). But THRIVE just makes it easier. If possible just try it. What harm will it do? not work? Then you lost nothing but if it does?????????? WOW You will gain a new outlook on life. All I can say I am Thankful for how I feel after years almost 25 years of pain. Got me crying as I type this. Thank You God.... Thank You, Thank You.
I would like a sample inbox me on facebook or leave a message here. :)
Thursday, June 26, 2014
I am so excited about this new start to my life. My body feels AWESOME Thank You Chris Belin for introducing my husband and I to this product. Thrive has really changed my life. I feel normal again. I don't feel like I have to struggle or work as hard as everyone else just to live. I can give my husband the wife he originally married and my kids the mom they deserve. If you suffer Please just check this stuff out. It could change your life like it has mine. This video is proof just Day 1 of THRIVE
Monday, June 9, 2014
Check out my Avon Store for some awesome deals
Friday, June 6, 2014
Your Avon Lady
Thursday, June 5, 2014
I really didn't want to talk about this but I needed to have a PET scan because my alkaline phosphatase levels were elevated. The test is to see if the cancer has come back some place else in my body. **BIG SIGH** I hope that my levels are elevated because I started taking tramadol for the pain in my feet(plantar fasciitis) If the cancer has come back it has a battle on it's hands.. Because God and I are in this together. They said my oncologist will have the results 2 working days. I had the test done Tuesday so I guess Thursday or Friday at the latest. I'm calling the Dr today to see if she has the results. This is very frustrating, every time I heal and recover and start feeling somewhat normal something else in my body goes crazy. UGGGG You just don't know how tired I am of doctors.The only thing I can do now is hold onto God and let Him guide me thru this.
This is why I have been trying to build my Avon business. Every time I try to go back to work something keeps going wrong and I can't so gotta work for myself. :) So I have been pushing my Avon business hard. I have a lot of support from my family. So please check out my store. I will ship or deliver locally. There are a lot of items on sale Thank you for helping me help my family. Every little order helps. Thanks again
Sunday, June 1, 2014
Wednesday, April 9, 2014
Well I had a little bit of an issue early in 6th week... but it was the nerves waking up and it was painful. It let me dizzy and just felt bad. It only lasted a couple of days. But the pain shows up off and on and throws me off. I'm getting out and walking more. I just can't walk as fast as I use to ....dizziness kicks in so slow going for me. I had a great time for my birthday(March 28). Had breakfast with my mom and then a long nap(3 hours) then dinner with hubby at a hibachi restaurant. It was fun. I was concerned if the noise from the chef would bother me and it didn't. The lights were low and it wasn't real noisy. I loved it. Then my daughter came in town to pamper me. So her and her best friend Symone took me to the MAC store to get my makeup done. I felt nice to brighten up my look. It felt to nice to feel pretty. I enjoyed being in the mall. I has been a long time since I have been able to walk around a mall. We got there early to make it easier on me. By the time we left it was pretty busy and things were bothering me. Between the lights and the people and just mall noise it was getting to be a bit much and I started to get pains in my head. Then we went to get our nails done. That was nice and relaxing. It has been over a year since I had my nails done so I enjoyed the pampering. Then we went to a nice Mexican restaurant that reminded Nay of Texas. I needed a very long nap after that day.
Now week 7. I went to church (where my husband is the pastor) Sunday. Loved it. I miss my Faith Church Baltimore family and fellowship. I was tired but it was a good tired. The noise bother me some. My head feels like it is tightening along the incision and I still get shocks of sharp pains at time. I drove this week. I had to take Dylan to the DR. for a checkup. I did good driving. Now having a toddler all day by myself is another story. I get tired very easy. I don't have the energy to care for a 2 year old all day. I thank God for Aunt Ann. She has been a true blessing watching him during the day while I heal. When I rest up during the day I have the energy to care for him when he comes home in the evening.
Now I am experiencing a sweet taste in my mouth all the time. I go to see the dr. next week. I'm not getting headaches as much. Just the sharp pains that come and go. I can actually say I am feeling good. I feel my life is better since Mindy the Meningioma was removed. I am getting stronger and stronger every day. God gets all the Glory. I trusted Him. I trusted He would care for me and He did. I am proof that God will keep his promises. But that will be another whole post...lol. I'm not 100% yet I would say 70%. There are still some things I can't do but I am healing and happy. I'm gonna try water aerobics this weekend to see if I can handle it. I am walking more than I was able to before the surgery. I am taking one day at a time. But I am having more good days than bad.
So very Thankful.
Monday, March 24, 2014
Recovering from brain surgery is going to take more patience from me. I see it is going to take a bit longer to get back to "normal" for me. Even if my body can do it the question becomes can my brain handle it? So far these days the answer has been NO!. I want to go to church this week. I miss church, my church family and just plain old fellowship. So as long as I am feeling well I will be going.
Oh guess what MY BIRTHDAY is FRIDAY. I made it to 44. I have survived and came out stronger. And for the first time I know what I want for my birthday. I'm going to a restaurant I want( no buffet). I don't know what else is planned. My husband is known for surprising me. My daughter is coming down Sat for a girls day. I'm excited. God is soo Good!!
Wednesday, March 19, 2014
Tuesday, March 18, 2014
My creative juices have been flowing like crazy. There is so much I want to make it is hard to know where to start. So Mindy the Meningioma didn't screw with my creativity. I have been crocheting since it is something I can do sitting still. I will start sewing next week. I will start my jewelery making up again also. I am excited that my head is clear again and I can focus better than before the surgery. So keep a look out for my creations. Candy J Boutique
Monday, March 10, 2014
Tuesday, March 4, 2014
I know this is off subject but I found a bald spot in the back of my head and another one over my left ear. It is sore there also. I guess that is where they bolted my head for surgery or something.... but the Bald spot about as big as a 50cent coin. Now I really don't know what to do about my hair. I just might be rocking headbands and scarfs and hats until everything grows out.
I won't be driving anytime soon. I still have trouble turning my head to the left without feeling like it is stretching my scar. I feel a lot of pressure in my right ear. Hope that goes soon also. I can only think it is from my brain healing.Hey I can do a real punk rock look with both sides shaved...lol. I miss being independent. I am resting and letting my brain heal. I only seem to sleep 2 -4 hours at a time. It doesn't bother me now cause I can rest when I want to (when the kids are gone..lol)
Thursday, February 27, 2014
Wednesday, February 26, 2014
Now besides food... I am doing well. I was able to go all day with no pain meds. Now I do have a lot a pressure on the right side and towards the back of my head. It is very uncomfortable. I have to watch how I position my head to keep a lot of pressure from building up. I am able to get up and around and it feels good to be moving about. I am resting so don't fuss at me. I still need a walker but getting stronger everyday. Now the next thing I want to do is wash my hair.... I so happy I went natural when I did but this mess needs a good washing. I will be able to after Thursday when the stitches come out. I can look girly again. I plan on sporting a cute mohawk for a bit until my hair grows out more. I'm recovering YAYYYYY Lord you are Awesome!!
Tuesday, February 25, 2014
Thank God for the Facebook support Groups Meningioma Mommas, mind over meningioma
They have helped me so much. Like I didn't know the steroids that I take would change how food taste but I will get it back after the meds wore off. I was pretty mad when I had my ball park beef hotdog and it taste like mush. I can't taste anything savory. and some sweet stuff just doesn't taste right. So I really don't eat unless my body is asking for food cause I find no pleasure in eating.
I also learned to sleep sitting up cause to much pressure on my brain laying down and trying to get up. actually I have been quite comfortable. I do miss sleeping next to my hubby. I won't start outpatient therapy for another week. I have a follow up on Thursday. I get the pathology report on my tumor. Right now...... my life have really slowed down. I guess I will take time to smell the roses
Sunday, February 23, 2014
I was able to walk a flight a stairs yesterday very well. I just have to use a few tricks to help my brain heal and regain more independence. I will be going to outpatient therapy to help me get stronger. I wish I could go to church today but just a walk to the bathroom is enough excitement for me these days..lol But God knows my praise!! I will be back soon Faith Church Baltimore
PS. I am asking for help with meals for my family since I am the family chef...lol A website has been set up to help schedule meals if you would like to help. I normally don't ask for help but I realize the brain is very sensitive and I will take a little more time getting back to my normal routine. Because of my husband's job and pastoring a church and taking care of home I know the meals would be one less worry for him. So if you would like to bless us with a meal please inbox me for the website and password to set a date. Thank you for your help.
Wednesday, February 19, 2014
Thank you for all the prayers. My surgery went excellent. It was 3 hours shorter than expected and the dr saved my hearing and facial nerves. Im being moved to my room today and I am able sit in a chair. I got a fat lip from surgery and my face is swollen.
I just so very thankful for your prayers. God really showed up. Thanks again.
Tuesday, February 18, 2014
Sunday, February 16, 2014
Saturday, February 15, 2014
Monday, February 10, 2014
Thursday, February 6, 2014
Tuesday, February 4, 2014
Thursday, January 16, 2014
Now I have a little more time to prepare my life for surgery. I guess after going thru 4 previous surgeries I know what needs to be done for my family and home and me to help our lives run smooth as possible during my recovery. I also have more time to loose some weight before the 18th. Well try to be healthier before the surgery. So aqua fitness here I come :).
Wednesday, January 8, 2014
Honestly I just want to sit in a corner and cry out of frustration. I was getting myself in a good mental state for this surgery. I don't want to have to take anything for my nerves. I just want this over with. The risks are still the same. Hearing loss and partial loss of feeling on the right side of my face etc. etc.etc. I'm trusting God that I will come out of this even better than I went into it. Hey maybe God just needed more time to shrink the tumor so I don't even need surgery. I can only pray.
So I wait for the call with the new surgery date.
Monday, January 6, 2014
Well I just got home from the Dr. everything looks good. Blood pressure good (good thing I have been taking my meds) EKG good ( whewww.. I really didn't want to go to the cardiologist any time soon) They a lot of blood. And I had to go for chest xray. My nerves are starting to get to me a bit. It is still kinda hard to believe this happening. I realized something today. I really don't like talking about this out loud.I had to explain to 5 different people why I was there..... The only thing the Dr didn't like was my weight but he said considering what I have been thru the past couple years it is very understandable and we will work on it after this surgery. This is still hard to believe.